A foundation that aims to create awareness of the deadly disease, Lupus, and provide support for those affected by it, has been launched in Dominica.
The launching ceremony of the Lupus Foundation of Dominica took place at the Fort Young Hotel on Thursday.
“It is our hope that this foundation will bring about the awareness of this deadly disease, support and provide a source of comfort for the victims and their families and most importantly to motivate them especially when they think that all is lost,” one of the directors of the foundation, Glorine Thomas said.
She noted that the foundation believes that awareness and positive attitudes can save lives.
“It is our short term goals to bring in Lupus Specialist doctors to provide medical care to the warriors, to have workshops and training for the local doctors and nurses to identify signs and symptoms and to treat Lupus victims,” Thomas stated.
She stated that there will be awareness campaigns to assist people in identifying the disease at a very early age.
She pointed out that Lupus is “a chronic auto-immune disease that affects mostly child-rearing women of African decent.”
“The disease has no boundaries, causing damage to any part of the body, skin, joint, any or all vital organs,” Thomas, who herself has been diagnosed with the disease, said. “The signs and symptoms are many, making it very, very difficult to diagnose. The cause of the disease is unknown.”
She noted that after she was diagnosed, she realized there was a need to have a support system in Dominica for those who suffer from the disease.
“After being diagnosed with Lupus in 2011, going through the struggles of being diagnosed, the symptoms, the medical trips, the procedures that I had to undergo, and they were many, and being aware of other persons who suffered the same, I saw the need to have a support system,” Thomas revealed.
The foundation was formed in July 2014 and has the motto: Support, Educate, Motivate.
It aims to:
• Providing Educational programs for affected person, their families as well as the general public
• Engaging in continue research ventures that would benefit persons affected
• Providing emotional support
• Seeking funding to aid with medical visits
• Fostering partnership with similar local, regional and international organization
The founding directors of the foundation are: Glorine Thomas, Taihisa Hill-Guye, Joanne Commodore and Dr. Irving McIntyre.
The Lupus Foundation of Dominica can be contacted via the website: www.dominicalupus.org, or email: email@example.com; or telephone: 225-3442 or 225-1766.